Patients raise their voices at CES
I’m about to escape the frigid winter blast in Chicago, a.k.a., Chiberia, for the relative warmth of Las Vegas (it will be below 40 degrees Fahrenheit at night, so it’s not exactly tropical there either) and the Digital Health Summit at International CES. On Wednesday afternoon at 4:10 p.m. PST, I will be moderating a panel called “Loudmouth Patients: Making Noise and Making Change.” Panelists will include: well-known empowered patient — and pain in Medtronic’s behind — Hugo Campos; Donna Cryer, CEO of the Global Liver Institute (and a liver transplant recipient herself); and Greg Matthews, group director of interactive and social media at WCG.
I’m giving just a short intro since the session is only 30 minutes long, though I do intend to give a condensed version of the story of how I had to raise my voice in support of my dad, who was rendered unable to speak by a rare disease as he was dying — and being badly mistreated — in an ill-equipped and poorly run hospital less than two years ago.
Hopefully soon we can all speak up to our healthcare providers without being blacklisted like Seinfeld’s Elaine back in the 1990s (h/t Brian Ahier).
Speaking of patients getting a look at their medical records, I’m also working on a story for U.S, News & World Report about the pros and cons of the OpenNotes project. Stay tuned for that one hopefully later this month.
See you at CES!
Ah yes Facebook saved my life right? If there really is an epatient movement why do we only hear from 1 or 2 of the same voices over an over again?
We all love a story of the individual over-coming great odds but what exactly did epatient Dave do to change his care as a result of being empowered?
It sounds like it was his doctor who sent him to the online support group for his anxiety vs a social worker and they confirmed that the treatment he had recommended for Dave was correct. of did eDave find his own cure?
The lessons seems to be to find a doctor who is tech savy, who works at a leading academic teaching center that you are able to afford (private insurance) vs anything the patient did.
Dr. Bob
I, for one, am really excited about this panel … Having studied online health behavior for the last several years, I’ve had a chance to see how online communities have evolved over time – and am now seeing much more direct, public interaction between patients and physicians. And in my view, that’s a marvelous thing for the online health ecosystem, which can be fraught with bad and even dangerous information. These leading docs and patients are combatting that effect daily.
[…] VP Product Development Karel Lahmy, who will be live on the scene at CES shortly.) There are even patient panels at this year’s conference! • Intel has entered the wearables market with a series of devices, […]
[…] I noted last week, I moderated a panel at the Digital Health Summit at International CES on “loudmouth patients.” Aside from a slight technical glitch in […]