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Loudmouth patients, in their own words

The video from the Digital Health Summit session, “Loudmouth Patients: Making Noise and Making Change,” that I moderated in January has been posted. It was a lively, fascinating discussion involving: empowered patient Hugo Campos; Donna Cryer, CEO of the Global Liver Institute (and a liver transplant recipient herself); and Greg Matthews, group director of  interactive and social media at WCG.

Unfortunately, one long-winded questioner from the audience took up all the Q&A time (and I initially mistook her for Bettina Experton of Humetrix), so some things went unanswered. If you have any questions for the participants, post them in the comments below and I will attempt to get the panelists to answer.

This discussion took place Jan. 8 at the Digital Health Summit at International CES in Las Vegas.

In case you missed it, here are some post-session interviews with Campos, Matthews and myself.

February 13, 2014 I Written By

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OpenNotes, changing roles in health IT and a Friday, um, funny

I’ve just had two new stories published on the US News & World Report Hospital of Tomorrow site: “OpenNotes Helps Keep Patients Informed and Engaged” and “The Evolution of Health IT Continues.” The latter is subtitled, “New roles signal new realities and priorities as hospital information technology changes,” and goes in depth and the changes underway in hospital HIS and HIM departments in response to various healthcare reform imperatives. I’d appreciate your feedback here, on the U.S. News pages and on Twitter.

Since it’s Friday, I’ll share something offbeat. I’ll let you decide if it’s a good idea or a gimmick. Nestlé Fitness has created the “Tweeting Bra,” with a Bluetooth-enabled sensor that sends a tweet every time the wearer unhooks the undergarment, reminding women daily of the importance of breast self-exams. Here’s a video, in Greek with English subtitles.

 

If you want more information, here’s a short interview with the keeper of the Tweeting Bra, Maria Bakodimus, a Greek celebrity. It’s only in Greek, without subtitles, but it does show the sensors in more detail.

If you want to get one, well, sorry.

 


It was a one-off prototype created for Breast Cancer Awareness Month in October.

February 7, 2014 I Written By

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More accolades for Topol as ‘connected health’ gains

I’m convinced that Dr. Eric Topol is one of those rare people, like Dr. John Halamka, who can function on minimal sleep, perhaps four hours a night. He just gets that much done.

Yesterday, AT&T named Topol chief medical advisor. As such, the company says, Topol will “impact the design, development and delivery” of connected health products and services for the AT&T ForHealth business. This is on top of his appointment last year as editor-in-chief of Medscape, his many speaking engagements and TV appearances and, lest we forget, his day job as cardiologist, geneticist and chief academic officer at Scripps Health in San Diego and leader of the Scripps Translational Science Institute.

Topol will not, however, be replacing Dr. Geeta Nayyar, who was full-time CMIO at AT&T until September.

This news comes a couple weeks after CBS News ran a segment on the possible demise of the stethoscope at the hands of the portable ultrasound.

 

This is not the first time we have heard this idea. Yes, it was Topol who dropped his stethoscope in the trash on stage at TEDMED 2009 and suggested that the handheld ultrasound should become the standard of care by the time the 200th anniversary of the stethoscope rolled around in 2016.

Given how slowly medicine moves, I wouldn’t bet on the stethoscope being extinct in the next two years; the cost of the GE Healthcare Vscan ultrasound, the one Topol demonstrated in 2009, hasn’t really budged since then. A new one will still set you back $7,900. I can’t see primary care physicians shelling out that kind of cash when the old technology is $200 or less.

Meanwhile, this week we get more evidence that “connected health” may be winning the terminology battle over mobile, wireless and digital health. The February edition of Health Affairs examines this field, which the policy journal says encompasses telemedicine, telehealth and mobile health. On the other hand, the lead author of one of the overview articles is Dr. Joseph Kvedar, founder and director of the Center for Connected Health at Partners HealthCare in Boston. He is the champion of the term, and possibly the creator of it.

 

 

February 4, 2014 I Written By

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Great news from Health eVillages

As a board member of Health eVillages, I’m proud to share this video from rural Lwala, Kenya, where clinicians and other health workers are harnessing the power of mobile technology to deliver better care and, for some people, the first real healthcare they have ever had. This video, from from when Health eVillages Co-Founder Donato Trumato and Program Manager Matt Linder trekked to Lwala in October, shows how mobile health is helping local women deliver healthy babies.

Subsequent to this trip, the Lwala Community Alliance highlighted the work of Health eVillages here. Then, at a Health eVillages board meeting in December, Trumato issued a challenge to raise $150,000 to construct a dedicated maternity ward at the hospital in Lwala by year’s end. Physicians Interactive, of which Trumato is CEO, pledged half that total, and then others far wealthier than I stepped up and helped Trumato met the goal by Dec. 26. Operating funds are still necessary, and Health eVillages (or “Heal the Villages,” as one partner has pointed out) wants to help more people, including some at a site in rural Louisiana.

Since 2012, Health eVillages has helped the Lwala Community Alliance cut early infant mortality in half (from 60 per 1,000 births to 31 per 1,000). However, the Lwala still area happens to have the highest HIV/AIDS rate in all of Kenya, so education, care and prevention are critical. Here’s an overview on the Health eVillages-Lwala Community Alliance partnership (.pdf). To donate, visit http://lwalacommunityalliance.org/donate/.

Thanks, and stay tuned for more updates.

January 26, 2014 I Written By

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Back from CES, and ready to, um, laugh about digital health

I got home from the Digital Health Summit at International CES in Las Vegas late Thursday night, and have spend most of the time since them just catching up on things. Among important news I missed was that Stephen Colbert took on health apps on Wednesday, specifically Doctor on Demand. Colbert joked that the app is going to “revolutionize medicine.” (“Why waste time getting an exam when you can just shoot your doctor an emoji of your shattered femur?”)

Ah, yes, revolutionary health apps. It has to be a joke, right?

“Clearly, app-based healthcare is the future of medicine,” Colbert continued, before introducing one of his own, from “sponsor” Prescott Pharmaceuticals.

The Doctor on Demand part starts around 3:30, but the earlier part is pretty funny, too. Some might be offended by this segment.

I will have more on the Digital Health Summit on MobiHealthNews and right here on this blog later this week.

January 12, 2014 I Written By

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Patients raise their voices at CES

I’m about to escape the frigid winter blast in Chicago, a.k.a., Chiberia, for the relative warmth of Las Vegas (it will be below 40 degrees Fahrenheit at night, so it’s not exactly tropical there either) and the Digital Health Summit at International CES. On Wednesday afternoon at 4:10 p.m. PST, I will be moderating a panel called “Loudmouth Patients: Making Noise and Making Change.” Panelists will include: well-known empowered patient — and pain in Medtronic’s behindHugo Campos; Donna Cryer, CEO of the Global Liver Institute (and a liver transplant recipient herself); and Greg Matthews, group director of  interactive and social media at WCG.

I’m giving just a short intro since the session is only 30 minutes long, though I do intend to give a condensed version of the story of how I had to raise my voice in support of my dad, who was rendered unable to speak by a rare disease as he was dying — and being badly mistreated — in an ill-equipped and poorly run hospital less than two years ago.

Hopefully soon we can all speak up to our healthcare providers without being blacklisted like Seinfeld’s Elaine back in the 1990s (h/t Brian Ahier).

Speaking of patients getting a look at their medical records, I’m also working on a story for U.S, News & World Report about the pros and cons of the OpenNotes project. Stay tuned for that one hopefully later this month.

January 6, 2014 I Written By

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Videocast with ATA: Mobile health predictions for 2014

A couple of weeks ago while I was in Washington for the U.S. News & World Report Hospital of Tomorrow conference, I stopped by the headquarters of the American Telemedicine Association to record a videocast with ATA CEO Jonathan Linkous. We discussed some of my predictions for 2014 in the fields of mobile health and telehealth:

  1. Imperative to cut costs will drive demand.
  2. More mental health services will be delivered remotely.
  3. Clarity from the FDA means more diagnostic apps and smartphone add-on devices.
  4. Patient engagement in Stage 2 Meaningful Use might finally make untethered PHRs and consumer-facing apps viable.
  5. Home monitoring and video chats will help prevent hospital readmissions.
  6. State licensing issues persist but some states are looking to adapt their rules to facilitate telemedicine.

I’m going to try to embed the video here. If not, here’s the ATA’s link.

 

November 15, 2013 I Written By

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Video: My interview with Hands On Telehealth

I recently was a guest on a vodcast with Nirav Desai, founder and CEO of telehealth consulting firm Hands On Telehealth, whom I met because I moderated a panel he was on at the American Telemedicine Association‘s annual conference in May. In a Skype interview that went up late Friday, we chatted for 45 minutes about telehealth, the broader  health IT landscape and how it all fits into U.S. healthcare reform.

I’m unable to embed the video on this page, so please visit the Hands On Telehealth page to watch the interview. (That’s a screen grab below.) The page contains a detailed description of the interview, much as I like to have for my own podcasts. Perhaps next time I’ll spend more time looking directly at the camera. :)

Hands On Telehealth screen grab

July 1, 2013 I Written By

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Ode to EMRs, in song format

Two North Carolina physicians have decided to have a little musical fun with their EHR-related frustrations. Pediatrician Ken Roberts , M.D., and hematologist-oncologist Jim Granfortuna, M.D., at Moses Cone Health System in Greensboro, N.C., have produced this little ditty entitled, “Ode to Electronic Medical Records, or Our Song of Epic Proportions.” Cone Health just happens to have an Epic Systems EHR.

Roberts and Granfortuna don’t seem like they’re anti-EHR, just anti-EHR that makes their work more difficult. From the song: “Now we ain’t saying the EHR is bad/When all the bugs are fixed I know we’ll all be glad/It’s just by then us pioneers will all be dead.”

May 21, 2013 I Written By

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Is this Cisco commercial reflective of the real world?

Cisco Systems is running this commercial about the “Internet of everything,” with a focus on connected healthcare.

 

It all sounds great, but how much of this is grounded in the real world today and how much is wishful thinking? I mean, connected medical records? It sounds so idealistic.

May 19, 2013 I Written By

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