I’ve occasionally explored some of the nomenclature in health IT, particularly how the term “personal health record” is something distinct from “electronic health record” and how some news reports confuse the two. I’ve been known to laugh at the use of “personal electronic health record,” which I think was an uninformed reporter’s way of saying that each person should have an EHR.
Over the weekend, I saw a distinct term from, I believe, Australia: “patient-controlled health record.” That makes a lot more sense to me and tells me the purpose of the record. A Google search on that term actually turned up a Harvard Medical School meeting on “personally controlled health record infrastructure” target”= new” that took place in 2006 and 2007. But the term seems to have disappeared from the U.S. radar.